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Department of Education Studies "Giovanni Maria Bertin" - EDU

Health Professionals and the psychosocial aspects of their work: a proposal for the expansion of core-curriculum based on the experiences of professionals and clients

Research project funded by HERO Research Grant, a highly competitive program that aims to promote research on psychosocial issues and challenges faced by people with hemophilia. HERO (Haemophilia Experiences, Results, and Opportunities) is an international, multidisciplinary initiative led by HERO International Advisory Board and supported by Novo Nordisk.

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Scientific coordinator: Prof. Laura Palareti

Project Team: Dina Guglielmi, Sonia Brondi, Silvia Potì, Gerardo Petruzziello

UNIBO’s role: Coordinator

Project Duration (in months): 24

Start Date: 01/03/2017      

End Date: 28/02/2019

Status: closed

Total Budget: 68,000 euros

Project’s Topics:

Description : Studies on the experiences of Health Care Professionals (HCPs) working with haemophilia are rare, despite psychological literature shows that the professional wellbeing correlates with motivation, teamwork, and a good quality of care. In order to overcome this gap, a specific technique was recently used to analyse the interviews of 62 HCPs (physicians, nurses, physiotherapists, social workers, and psychologists) collected in 7 countries (Algeria, Brazil, France, Germany, Italy, UK, USA) during the first Qualitative Hero study (2010).

The analyses revealed the cognitive and affective contents of five main themes that describe HCPs' experiences with haemophilia, regardless of where they live and practice. The themes are: 1) Dealing with policies, stakeholders and resources of the local care system; 2) Caring for impaired adult patients; 3) Communication and consultancy; 4) Caring for children and adolescents; 5) Consider family dynamics.

This project is based on the idea that each theme represents an area where the use of different perspectives (HCPs, PWH, families and patients' associations) can lead to the identification of relevant cross-professional and non-technical skills that support multidisciplinary and comprehensive care of PWH.

The first aim of this two-year work is to identify such competencies, while the second is to pilot the assessment of the related training needs in the five domains.

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